Tuesday, October 20, 2009

Reid

I recently made a connection with someone all the way in England who has found me through this blog, which is pretty cool since I considered this blog to have been just floating around in cyberspace, forgotten.  Sadly, our connection is because the baby she’s carrying has also been diagnosed with Potter’s Syndrome/Sequence.  She has older children and therefore has the difficult decision to make of how and when to tell them, which got me thinking about Reid.

She inspired a conversation I had with Reid, asking him if he remembered Olive. He said “yeah” but couldn’t give me specifics. So, I showed him her photo album and told him about how she was only here for a short time and then went to Heaven. I told him how much we missed her, but we knew we would see her in heaven. He humored me, but mostly just made it clear that he was disappointed I hadn’t gotten the Star Wars pop-up book off the shelf instead!

That had, however, initiated conversations between Reid and me about heaven over the following couple weeks.  I contemplated whether or not I wanted to hold off on the subject of death.  He is only three.  Would I be robbing him of his right to be carefree?  No, I decided.  I want my kids to grow up understanding that this life and the world around us is temporary.  There’s more.  So, when I was buckling him into his car seat the other day and he asked me if he could go to God’s house, I explained,  ”Yes, you could.  When you die, if you have given your life to Jesus, then you will get to go to God’s house.  

“When I die?”  he asked innocently.  

“Yes,” I answered.  ”We’re all going to die.  We’re only here for a little while and then we’ll get to be with God in heaven, His house.  Mom and Dad will be going there and Olive is already there.  She was only here for a little while and now she’s with God.”  

He seemed to be following me.  ”At God’s house?” he asked.  

“Yes!  Heaven!”   I responded.  

“Will He take me to the farm?” he asked sincerely.

“I’m pretty sure He would love to.” I answered.

img_03272  img_0333img_0350c

 

 

 

Posted by mrandmrswaltenburg at 05:57:48 | Permalink | Comments (2)

Saturday, October 17, 2009

A Key

Next month is Olive’s second birthday.  What am I still doing here??  The year following Olive’s big debut, I granted myself a spiritual leave of absence.  It was as if I had thought and prayed harder during that pregnancy than ever before in my life and when it was over I just turned my brain and heart off.  I drowned out any thoughts about God because they led to questions I couldn’t answer.  I felt as if I so hugely misinterpreted who He is when I sought him more than ever before, that I couldn’t help but wonder if I ever knew him at all.  Confronting those questions led to my wondering if I’ve created every encounter I’ve ever thought I’ve had with Him in my imagination.  

After about a year, I had a dream.  It was as if all that suppressed stuff was forcing its way to the surface through my subconscious.  In this dream I was in a dimly lit, black room with a stage, much like the iMusicast room that Regeneration met in when I first gave my life over to Jesus.  There was a red telephone on the stage.  I was pretty sure I was dead and was in some kind of limbo.  I was in one of the seats among others below waiting for my turn.  Then it came.  I somehow knew God was on the line.  With much hesitation I answered.  God had the voice of a large, older, southern black woman (and no, I hadn’t yet read “The Shack“).  God asked me if there was an olive in my martini.  And like we often do with surrealistic dreams, I knew what He was asking.  And yes, there was an olive in my martini, I confessed.  I had put Olive between us.  That’s all I remembered. 

I knew God was telling me it was time.  My L.O.A. had come to an end.  Trying to confront questions which I cannot answer led to my questioning of every God encounter I’d ever thought I had, major and minor.  After believing for about seven years that I was part of a grand plan of a great and loving god, I cannot articulate the pain in sincerely contemplating if it all really is random, death is death, and on top of that my Olive really is gone.  To say that it was an uncomfortable process would be an understatement.  At one point I cursed God for reminding me where my flash drive was.  I did.  See, we have this thing, God and I, where, when I lose something important, I ask Him where it is and He tells me.  So, after searching every possible place I could think of and still coming up dry, it occurred to me to ask the one true know-it-all.  I got on my knees, quieted my head, and said to him something along the lines of, “Hi.  I know we haven’t talked for a long time… But I lost my flash drive… And I know you know where it is, so if you’d like to let me know…”  And of course it came to me.  I should have been grateful.  I should have been ecstatic.  Instead, I was more like WTF??  (Sorry mother-in-law and everyone else who reads this whom I respect.  But really, WTF?????)  ”Ok, so you’re really there.  So, where WERE you?????”  I was devastated.

However, I came to the conclusion that I still believe.

So, then what?  I tried signing up for a few women’s bible studies because, well, that’s what you do, right?  I recall worship sessions being like a flood of arguments in my head about the truth in the lyrics projected on the screen in front of me.  I hated it.  It felt like my skin was being clawed off, not to be dramatic.  I remember, despite all the arguments proceeding in my head about the teachings in the studies, receiving nuggets of gold that would surely help me move on into a “normal” walk with God.  But then I’d forget what they were.  

I can’t say I didn’t think this would happen if Olive wasn’t healed.  I was well aware.  I guess I just didn’t expect it to take so long to overcome.  She’d have turned two this November.  And here I am.  I am happy and blessed.  I love my life.  I know I lack a certain joy, though.  I don’t pray.  I don’t know how anymore.  They hit the ceiling, if you know what I mean.  I keep looking for something… Something to jolt me out of this funk.  A key.  A breakthrough.  Nothing. 

Despite my frustration in my need for some tangible means to move forward, I’m beginning to understand that I’m right where I’m supposed to be and I need to just be.

Insight welcome.

Posted by mrandmrswaltenburg at 08:00:26 | Permalink | Comments (5)

Tuesday, September 22, 2009

Red Tape

Blogging via my phone from the parking lot of the Social Security office, so please excuse the broken sentences and any typos…

I’m sure anyone who reads this can share in my dislike of tax-filing, call trees, mail from the IRS that doesn’t include a check, filling out cryptic forms which require instructions for their instructions, repeated recordings about how important your call is while waiting on hold only to be put on hold longer, and wasting half a day at the social security office (or any government office for that matter), especially when it turns out you actually didn’t need to go there in the first place.   That’s right.   I’m ranting.

Long story, short:
1.  Claimed Olive on our 2007 taxes (tax lady said we get the exemption for the whole year, as she was a “live birth” and we think Olive would’ve wanted it that way). =)
2.  Ordered official birth certificate and sent with tax filing.
3.  Received tax return, less Olive’s exemption with a letter from IRS denying exemption w/out a social security number (SSN) for her.
4.  Tax lady said to order official death certificate and send with official birth certificate to IRS with 1040x Amend form, writing “deceased” in SSN field.
5.  IRS responds with letter insisting on an SSN, or tax ID number (ITIN) if not eligible for an SSN, in order to file our return and claim the exemption.
6.  Called Social Security office who told me to fill out an application for an SSN and bring to office with birth and death certificate.
7.  A year and a half later: Social Security office guy tells me, after long wait and Colby taking day off to watch the boys, that they can’t issue new SSN’s for “deceased.” All those things I ranted about above, I very much dislike, but talking to strangers over the phone and through windows with little holes to speak through about my “deceased” daughter… That, I hate… Almost as much as I hate seeing “Never Married” on my daughter’s death certificate.
8.  Anyway, SS guy gives me a W-7 form to fill out and mail to IRS to get Olive’s ITIN.
9.  Once I get her ITIN I can complete another 1040x Amend form and mail it to the IRS to claim the exemption.

Did I mention that this exemption is for $1,200??  I plan to put it towards converting one of our spare rooms into a homeschool classroom.  Hopefully this works and I can save someone else from having to navigate through all this red tape.   Now I’m off to another government office, the DMV, but with a much more exciting purpose: to trade in my motorcycle rider’s permit for my M1 license! First, a stop at In n Out.  I deserve it!

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Tuesday, November 25, 2008

Happy Birthday, Olive!

Today, our little Olive would be one year old!  Somehow the past year has dragged on, but flown by all at the same time.  Just like the day of her birth, today has so far been filled with both mourning and joy.  Colby and I spent this morning watching the sunrise, as we did the morning after losing Olive.  We also thought it would be an appropriate day to complete the writing of her birth story, which I’ve posted here to share with you all.  I feel like I’ve just relived that day by completing that.  Later tonight, we’ll be gathering with family to celebrate at the Olive Garden.  =)  This could be the beginning of a new tradition!

Anyway, happy birthday, dear Olive.  We miss you!

Click here to read Olive’s birth story.

Posted by mrandmrswaltenburg at 16:44:16 | Permalink | Comments (1) »

Wednesday, August 13, 2008

Reason to Celebrate!!

The first image that came up on the monitor showed lots of darkness surrounding Baby, which is the amniotic fluid… EVIDENCE OF KIDNEYS!!!!!!! We were immediately being put at ease and able to actually enjoy the experience! The radiologists found everything that they wanted to, all major organs, including two healthy, functioning kidneys, and all extremities, as far as could be assessed via ultrasound. Since everything seems to be healthy as hoped, we kept with our plan to keep Baby’s gender a Christmas surprise (due date is 12/28!), although the radiologist said it was obvious to her. =)  We may even go forth with our desire for a home birth… we’ll see!

This feels like the beginning of a new pregnancy. I’ve already noticed a change in Colby in how he’s now allowing himself to get excited about Baby. And in perfect timing, he got to feel this baby move for the very first time last night as we were falling asleep.

Now for a sneek peek:

Baby’s profile with hand up to mouth and knee bent…

Profile of Baby’s face:

Profile of Baby’s face with mouth open, swallowing fluid, which technically is pee…. Let me help you understand the beauty of this…. Baby uses kidneys in order to pee, creating the amniotic fluid, which surrounds and protects him/her. Baby then swallows and practices “breathing” the fluid, which continues the process, meanwhle developing Baby’s lungs for life outside my womb. Since Olive did not develop kidneys, she was unable to creat fluid to help in the development of her lungs. And that is why this sonogram of Baby swalloing its own pee is such a beautiful thing. =)

Thanks everybody for your encouraging emails and phone calls, and especially for joining with us to pray for this baby until he or she is safely in our arms… (Then we’ll really need to start praying!)



(Music by Brian & Jenn Johnson)

Posted by mrandmrswaltenburg at 22:14:10 | Permalink | Comments (1) »

Monday, August 11, 2008

A New Soul Brews…

This pregnancy has understandably brought on many recollections of all that we had recently been through, but most of all, it has been very healing for me. I’ve been forced to shift my focus to the future. A brand new soul brews in my belly! A little sister or brother for Reid and Olive. I feel sooooo blessed.

After our eyes have been forced open to the evil that steals life and joy, our experience with this pregnancy is no longer the blissful, innocent experience that it should be. We have our ultraound this Tuesday where, instead of being excited about the opportunity to peer in on this new life and potentially get a sneak peek on whether I’m carrying a baby boy or girl, we are battling nerves and fears of hope for a healthy baby. I’ve chosen to simply not worry, though. My worries or fears will not change any outcome, nor will any outcome influence our decision to carry this baby as nature allows. So, I choose not to worry and I choose to hope.

Please hope and pray with us for kidneys and all other parts that make a healthy baby! The ultrasound is this Tuesday at 1:30. We’ve opted to have a level two ultrasound, which takes extra time to check on each organ in better detail. I’m not nervous right now, but I imagine we will be as we drive to the doctor’s office, as I lie on the table, as the doctor stares at a monitor for what will probably seem like an eternity before saying anything. Adding to the sense of deja vu is the fact that this pregnancy is only one week earlier this year than my pregnancy with Olive was last year. (If you look at the very first entry to this blog, you will see that this ultrasound with Olive took place on August 13th, while this one is taking place on August 12th.) So, please pray for baby and for continued peace for us. Thank you!!

Here we are during our recent mini-vacation to Vegas.  Check out the new belly!

Posted by mrandmrswaltenburg at 06:54:03 | Permalink | Comments (2)

Wednesday, April 30, 2008

Love Made the Difference

Colby and I spoke last Sunday at our church about our experience with Olive as part of a series called, “Love Made the Difference”. It was a very emotional and difficult subject to talk about publicly, but I think it’s already proving to be very healing. For the first time, I’m able to be open with new friends about Olive without struggling to hold back tears. I guess I just got it all out at once! If you’d like to listen to the message, you can click on the links below. …Plus, there’s an extra-sweet announcement at the end!

iTunes
First open up iTunes and then click on this link http://phobos.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?id=211831061

Message Download page (RSS Feed) at http://podcast.sanctuaryweb.us/xml.php?feed_id=479

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Thursday, March 20, 2008

An Update

Thank you to everyone who has been thinking of us, praying for us and checking in on us. Colby and I are doing very well, considering all we’ve been through only four moths ago. I feel like a tornado has passed. The first stage was getting the diagnosis: seeing the tornado and knowing that it was coming right toward us. That stage was filled with dread, panic and despair, as well as a level of faith and hope we’ve never known before. The second stage was enduring the chaos: going into labor. The tornado was here. There’s nothing we can do now, but experience it. Then we found ourselves in the eye of the tornado: everything stopped when we gazed upon our beautiful baby girl. Nothing mattered -nothing that we had been through or were about to go through in order to have this moment with her. And then the other side of the tornado hit us. Adrenaline levels have plummeted. We were left to pick up the peices and now find ourselves rebuilding our lives, knowing we’ll never be the same.

Time heals, so they say, however the grief comes like waves: crashing down, subsiding, crashing down again. Thank God our hope is elseware: a place we can envision slightly clearer than before Olive because we know she’s there.

Throughout all of this, I’ve felt like I’ve been walking around with a massive, gaping wound. Ironically, this has given me an immense sense of compassion and empathy for people I encounter, especially strangers bacause I’m aware that they have no idea what I’ve just been through and therefore I become accutely aware that I have no idea what they are going through, or have been through, or are even about to go through. When strangers are short with me I think, “If only you knew…” but then I’m forced to turn that around on myself.

As far as future children go… We are undergoing genetic counseling. Despite everything we were told about this being a random, fluke thing, we’ve gotten contrary opinions since getting Olive’s autopsy results and figure the more we know, the better. Colby and I recently had ultrasounds to verify that we each had two, functioning kidneys, which we do. This was a relief because, if one of us did have something wrong with one of our kidneys, it would mean a 50% chance of something like this happening again with each of our future children. That whole kidney ultrasound experience was pretty emotional since we found ourselves in the same exact room with the same exact unltrasound tech as when we had our “routine” 20-week ultrasound, where we first learned something wasn’t right. De ja vu, anyone?

We’re definitely wanting more babies. I’m daunted by the thought of another nine months of pregnancy, considering I’ve been emotionally ready to hold my baby since last November. We are currenly not “trying,” but are “alowing” for another baby. =) I am nervous when I envision our next “routine” ultrasound with our next pregnancy. I feel like my innocense has been stripped and I will never again enjoy the naivness that should accompany routine check-ups throughout a pregnancy. I’m reminded of Adam and Eve being suddenly ashamed at their nakedness, even though they’d been naked all along. Anyway, I’m confident that, because of our trust in Jesus and our relationship with Him, we will be just fine.

As for healing… Olive, as described by our pastor at her Celebration of Life, is our muse. She forced us to claw for truth more intently than ever before. I still believe in a God who heals, who wants to heal, who has already paid for our healing. While we’d be expected to drop this whole subject after Olive’s death, on the contrary, we’re stirred and can’t shake this desire to see more of this side of God. I recently heard a quote by Jack Hayford, “If we pray for someone and they’re not healed, the only thing it proves is that we haven’t yet arrived.”

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Saturday, December 15, 2007

A Beautiful Day

Olive’s celebration was perfect. It was a day of heavy tears, yet relentless hope, arduous questions, yet insistent worship, Olive-shaped holes, yet extraordinary testimonoes of changed lives. Colby and I were overwhelmed by all the people, many who traveled from out of state, to celebrate our girl’s brief, but momentous life. The words spoken were beautiful and the songs sung were healing and full of worship.

Here are links to the slideshows that were shown today:

Olive’s Slideshow by Adobe Vision
Olive’s slideshow by Deb Wat or try this link

In closing, a letter to my girl:

My dear Olive,
How I’ve always dreamt of having my own little girl,
How I would have taught you so many things…

My dear Olive,
When life’s disappointments seem to contradict the goodness of God,
I would have taught you about FAITH.

My dear Olive,
When you would have to let go of someone you held close to your heart,
I would have taught you about HOPE.

My dear Olive,
When your soul would ache with a willingness to sacrifice everything you have,
I would have taught you about LOVE.

My dear Olive,
All these things I would have taught you, if only we were given more time.
All of these things I would have taught you, but instead you have taught me.

Until it is here, I will be dreaming of the day
when I will hold you in my arms again.

I love you,
Mommy

All in all, it was a beautiful day.

Posted by mrandmrswaltenburg at 22:37:02 | Permalink | No Comments »

My Heart Will Follow

I’m really excited about Olive’s party tomorrow.  I’m looking forward to celebrating the life, however short, Olive spent here with us.  She was such a blessing and so worth honoring.  I look back on her pictures every day.  She was just so beautiful.  I can’t wait until the day when I get to see her again.  I don’t know much of what to expect in Heaven, but I do know she’ll be there and that’s enough to stir anticipation in me. 

I still cry a little every day, but my tears have changed so much in the past three weeks.   During the first few days, they were uncontrollable tears of devastation.  As I gaze on her pictures now and watch and re-watch the video from after her birth, I cry mixed tears of joy and sorrow.  I’ve discovered though, that my sadness is for myself, not her.  I’m selfishly sad for my loss.  Forgive the cliché, but I know where she is and have complete comfort in that. 

I am still left with an inconsistency between two truths:  God being good and my sweet angel dying.  I don’t have the answer that will make sense of why she wasn’t healed.  Colby reminded me that, that is where faith comes in.  If we had all the answers, we would have no place for faith.  So, tomorrow we will rejoice.  We will praise God and will continue to praise God.  We will say, “Up yours!” to Satan because he won nothing.  Victory is God’s.  I will act on these truths and my heart will follow.

Posted by mrandmrswaltenburg at 05:49:15 | Permalink | Comments (3)